Welcome to Hope Rising!

'When you have come to the edge Of all light that you know, And are about to drop off into the darkness Of the unknown, Faith is knowing One of two things will happen: There will be something solid to stand on or You will be taught to fly'
Author Unknown.

Through this journey, no matter what we've faced....our Faith has taught us how to 'stand' and 'how to fly'

Please join us on our journey of Hope. Some times we are 'standing' and some times we are 'flying' - but one thing is for sure....our two amazing children (Will and Sasha) have been the biggest blessings in our lives.
While they struggle through life-threatening illnesses, they also show us how incredible life truly is. Their joy, laughter, fierceness, and tender spirits lift us and carry us through any storm we've had to weather!

Monday, March 16, 2009

5 a.m. greeting

Greetings from the road in NC. We stayed 2 nights at our friend Julie's house to give Sasha a little extra time to rest up as she really was uncomfortable while driving just from GA to NC. We're hoping that this extra time allowed for more healing and an easier trip home.
We currently have 690 miles left to go on our trip home. We left at 5:03 a.m. in hopes that we will miss rush hour traffic in NY this afternoon as I am NOT really excited about the thought of sitting in traffic of that calibur!
We took a trip into Raleigh to a little museum with the kids yesterday - Sasha was content in being held by daddy or sitting on his shoulders 95% of the time. The museum was incredible, and, better yet - FREE!
The kids had a blast and we came back to the house and rested before dinner. After dinner we put the kids to bed. Much to my surprise, Sasha was asleep within 15 minutes and Will was asleep in 30!!!!
As grateful as I am to have had such amazing hospitality along the way, I am SOOOOOOOOOO looking forward to my own bed (so is Ralph). The past few nights Will has been moving like CRAZY in his aerobed and MAN it makes A LOT of noise!
I miss my family and my kitty (and our tadpole with 3 legs - hehehe).
When we get home we have A LOT to do and catch up on.
We'll have to unpack - do infusions (Tuesday), take care of some bills, get the kids set for school (I think we'll send them back Wednesday just to give them a day to get acclimated and situated as we will be getting in late tonight). I have a TON of work to do for the Beer and Wine Tasting as well as preparing to head out to DC for Capitol Hill day next week - as well as the upcoming blood drive on April 18th....and so much more.....that's just the tip of it.
Hopefully we'll just be SO busy that 'waiting' for the test results won't be as agonizingly long as it seems it will can hope, right?
I am looking forward to a good night's sleep and wake up feeling refreshed!!!!
Both kids sound a bit congested this a.m. - so I am hoping that it's just 'early morning stufiness' - as they have missed enough school already!

Ralph is driving - but I will be taking over soon so I am going to finish up what I need to online and then get ready to drive as long as I can!

Thank you all so much for your support, kind words and prayers through this all. I realize that things can be so much worse - but it doesn't negate the fact that things have not been fabulous here in our neck of the woods. It's been a tough road for us lately - but we've had such great friends and family to support us and carry us through it...we are truly blessed.

When life gets darkest - it's by faith that we see.

Stefani and Ralph

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